Epilepsy Program

Epilepsy is a risk of recurrent unprovoked seizures. Many different conditions or syndromes can cause epilepsy.

A seizure is a change in brain activity caused by abnormal synchronous electricity in brain waves. This abnormal electrical activity leads to changes in behavior and physical symptoms, such as convulsions. 

Seizures can come in all shapes and forms. The most known seizures include full body stiffening and jerking with alteration of consciousness. Larger convulsive seizures are called generalized tonic-clonic seizures or grand mal seizures. During grand mal seizures, patients may bite their tongue or lose control of their bowel or bladder. However, seizures can also appear as unexplained postures; staring; movements of the mouth, eyes, or hands; and changes in breathing patterns. It is important to talk to your neurologist about any symptoms or changes in behavior your child is having to come to an accurate diagnosis.

Talk to your doctor about the next steps. Sometimes an initial evaluation can help determine an underlying cause. But in most cases, no single cause is identified. The first step is anti-seizure medications to help prevent more seizures from occurring.

• Water safety: No tub bath without direct observation by an adult. Showers only – with doors unlocked. No swimming without adult supervision, and a life jacket must be always worn when boating or participating in any water activity.
• Bike or scooter riding, skateboarding, horseback riding: Must always wear helmet.
• Climbing: Nothing higher than 10 feet (ladders, trees). No hanging upside down from jungle gyms or other playground equipment. Avoid having sharp edges in and around your home and look out for other dangerous home conditions.
• Driving: No driving, including all-terrain vehicles (ATVs), mini-bikes, four-wheelers, golf carts, or any other motorized vehicle unless your healthcare provider has given prior approval.
• Firearms: No hunting or handling of firearms.
• Burns: Burns are a risk in the kitchen with hot or boiling water or hot oil, and your child may need to avoid these. Burns from hot tap water or shower water are a problem unless water heaters can be set to a safer temperature below 120°Fahrenheit. Devices such as hair curling irons or blow dryers could also increase the risk of burns and should be used with caution.
• Tools: Power tools, lawn mowers, and garden equipment may be dangerous if a person is at risk for seizures. Some hobbies could be dangerous as well. Make sure to assess the risks of a tool or task for your child and talk to your child’s doctor or neurologist about safe alternatives and activities for your child.

There may be other risks not covered here. Talk to your child’s doctor if you have any specific questions or concerns.

• Keep calm and reassure other people who may be nearby.
• Prevent injury by clearing the area around the person of anything hard or sharp.
• Ease the person to the floor and put something soft and flat, like a folded jacket, under their head.
• Remove eyeglasses and loosen ties or anything around the neck that may make breathing difficult.
• Contrary to popular belief, it is not true that a person having a seizure can swallow their tongue. Do not put anything in the person’s mouth. Efforts to hold the tongue down can injure the teeth or jaw.
• Turn the person gently onto one side. This will help keep the airway clear.
• Do not hold the person down or try to stop their movements.
• Time the seizure with your watch. If the seizure continues for longer than five minutes without signs of slowing down, call 911.
• After the seizure, if they have trouble breathing, they appear to be injured or in pain, or recovery is unusual in some way, call 911.

• Stay calm and speak reassuringly.
• Guide them away from danger.
• Block access to hazards, but don’t restrain the person.
• If the person is agitated, stay a distance away, but close enough to protect them until full awareness has returned.

Consider a seizure an emergency, and call 911 if: 

• The seizure lasts longer than five minutes without signs of slowing down. 
• The person who has trouble breathing afterwards appears to be in pain or recovery is unusual in some way.  
• The person has another seizure soon after the first one.  
• The person cannot be awakened after the seizure activity has stopped.  
• The person was injured during the seizure.  
• The person becomes aggressive.  
• The seizure occurs in water.  
• The person has a health condition like diabetes or heart disease or is pregnant. Learn more about epilepsy information and resources through the Epilepsy Foundation at epilepsy.com.