As an accredited National Cystic Fibrosis Foundation member, WVU Medicine’s Cystic Fibrosis Center has more than two decades of experience caring for children and adults with this debilitating disease. Our leading edge research, and early diagnosis, combined with our team approach, results in the highest lung function for children in the state of West Virginia and our ranking as a top ten center in the United States.

Mission

The mission of the WVU Medicine Cystic Fibrosis Center is to provide state of the art cystic fibrosis (CF) care, to discover new treatments through research, and to allow for education with everyone involved.

Our Patients

We care for both adults and children, with patients traveling from across West Virginia and parts of Ohio, Maryland, and Pennsylvania.

Location

We are located on the WVU Medicine Health Sciences Campus in Morgantown, West Virginia, on the 2nd floor of the Physician Office Center, (1 Medical Center Drive, Morgantown, WV 26506).

Multi- Specialty Care

Because CF often affects many of the body’s organs and functions, and related complications can vary by patient age, our CF experts, other medical specialists, geneticists, counselors, and families work together as a team. This multi-specialty team approach ensures that the most comprehensive care is provided to each patient. Our multidisciplinary team includes the following members providing a multitude of services:

  • Physicians
  • Nurse Practitioner
  • Nurse
  • Dietitian
  • Social Worker
  • Pharmacist
  • Respiratory Therapist
  • Psychologist
  • Research Coordinator

In 2016, WVU Medicine Children’s was nationally ranked 3rd in Nutrition and 16th in Lung Function out of 173 Cystic Fibrosis Foundation Centers. BMI is the number one predictor of lung function in patients with Cystic Fibrosis. By maintaining a BMI above the 50th percentile, our patients have been able to successfully maintain lung function above the national average, resulting in improved clinical outcomes.

Click image to view larger.

Graph: In 2016, WVU Medicine Children’s was nationally ranked 3rd in Nutrition and 16th in Lung Function out of 173 Cystic Fibrosis Foundation Centers.

Services

  • Sweat Testing

Sweat testing is the primary diagnostic tool used to determine if a person has Cystic Fibrosis.

The test is performed by a respiratory therapist in the Outpatient Laboratory, located on the first floor of the Physician’s Office Center.

After the sweat test you will meet with a physician who will explain your test results and discuss any of your questions or concerns.

Please contact Erin Brozik at 304-293-1227 to schedule an appointment.

Click to learn more about sweat testing.
Click to watch a CF Foundation video about sweat testing.

  • Pulmonary Function Testing
  • Specialty Pharmacy Services
  • Nutrition Services
  • Supportive Care
  • Physical Therapy

Research

We are one of 89 Therapeutic Development Network (TDN) CF research sites in the United States. The TDN designation allows patients with CF easy and rapid access into the CF research pipeline to clinical trials of the newest and latest CF medications. Our center is currently enrolling patients into five clinical trials with additional studies in the pipeline.

For more information about the available studies and to participate in a CF clinical trial, call 304-293-5264.

Grants

Our center is currently participating in several grants offered via the Cystic Fibrosis Foundation

  • Therapeutics Development Network (TDN)
  • Success With Therapies Research Consortium (STRC)
  • Mental Health Coordinator (MHC)
  • Additional Research Coordinator (ARC)
  • Cystic Fibrosis Outpatient Clinical Pharmacy Services

Cystic Fibrosis Center Team

Mountain State Cystic Fibrosis Center Newsletter
Fall 2017